Our dear friend, Gabe Morales, passed away on Monday. His mom, Dianna, has been Aidan's main care provider since he was a baby. Their whole family has become a part of our family. Our hearts are breaking with them over this huge loss.
Gabe was a wonderful spirited child who loved life! He taught us all about pure joy! We know that he is free to run, jump, and play in the presence of Jesus now and that brings us great comfort.
12:57 PM
5:16 AM
What a blessing Aubrey gave us last night! During the middle of dinner Aubrey says to me, "Mommy can I say prayer?" Usually she always wants us to pray. Of course we had already prayed, but who can say no to that? So I said sure. Here is her prayer. "Dear God, thank you for the love. Thank you for Mommy and Daddy. Thank you for the food. In Jesus name, Amen." So sweet. It was the first time she has said her own prayer out loud. She also has started imagining she is walking with God after we tuck her in at night. She said they walk to the candy store! I love it!
There's nothing better than watching your child develop their relationship with God. I only hope and pray that she can maintain that "realness" as she gets older.
5:36 AM
Lately Aidan has been crying a lot. We think it may be GI related because he is gassy and it is often after feedings. But then he's also just acting really sensitive to any change - like moving him from one activity to the next, changing his position, or putting him to bed. It could be constipation, a side-effect of a new drug (Sinemet), responding to school being out, or a whole slew of other things. It is very frustrating trying to figure it out. There's just so many variables and he can't really tell us what's wrong. He woke up this morning at 4:30am crying. I gave him his meds early to help him calm down since his normal music and mommy were not working. He calmed down, but then had a seizure. Not sure how long it was because I didn't see when it started. The seizures are relatively new and infrequent so they are very upsetting to witness.
Also Aubrey and I leave for a visit to Utah tomorrow. It is difficult to leave when Aidan is having so much trouble, but I know he will be in excellent care between Bruce and Dianna.
Please pray for a resolution to his recent troubles, for God's wisdom, strength and peace. We know that God loves Aidan and has him in His hands!
5:36 PM
Aubrey calls the toilet paper rolls her telescopes. The other day she held it up to her eye and said in her gruffest pirate voice - "ARRRRHH! I'm looking for someone to play with. Has anyone seen my Daddy?" It was so funny. I don't know, maybe you had to be there.
5:27 PM
Congratulations to Justin & his girlfriend Cathy on their graduation from Evergreen College. Justin has worked very hard to accomplish his BA in Fine Arts. We are so proud of you!
1:17 PM
Aubrey is always providing us with great laughs. I have been bad about writing down the great things she says, so here is my attempt to remember some from the last week or so.
1. After overhearing me request a refill of my birth control prescription, she told Aidan's therapist that "mommy needs to go get her birthday pills."
2. While helping clean Aidan's syringes, she said, "I have to do a lot of work to get some money to buy food."
3. At the doctor's office waiting room she announced to everyone that she was there to pee in the doctor's special cup.
4. She is using all sorts of big words like "prefer, actually, probably, beautiful, lovely".
5. Someone said "me too" and she said "me three".
6. She can order my drink at Starbucks "decaf soy latte" and her favorite restaurant is "Japanese Steak House", both of which she says very well. Her favorite food is "shrimp".
7. As Dianna was leaving our house on Friday she said, "Bye Bye, I hope you have a good weekend."
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